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Beth L. Gainer's avatar

Hi Nancy,

Thank you so much for referring to my recent article and for quoting part of it. I appreciate the impact my words have had on you.

Thank you for sharing about your physical and emotional scars. Losing one's mom to breast cancer is awful beyond words, and you honestly share about this in your wonderful blog and your beautifully written books. Then getting diagnosed yourself is another horror. I'm saddened by all you've endured.

I know I've written about my physical and emotional scars in the piece you referenced, so I'm going to share about what I didn't capture in that post. Regarding physical scars, my first surgeon was a breast conservationist who loved lumpectomies over mastectomies. When I first was diagnosed, I wanted to keep my breast, so I went with the lumpectomy and radiation -- chemo simultaneously with radiation. But he didn't get clean margins, so I underwent another lumpectomy. Totally disfigured. Then five years later, a scare and another lumpectomy. At that point, with a history of breast cancer and subsequent false alarms, I told him a double mastectomy was in the cards for me. He disagreed, so I fired him. I hired one mastectomy surgeon and two microsurgeons. I got a double mastectomy with DIEP flap reconstruction.

Regarding the many physical scars from my DIEP flap, the one I dislike the most is the one where my original belly button was housed. The new belly button is not nearly as nice as the one I was born with. But I am grateful to be alive, so I try not to think too much about it.

The emotional scars for me, as you know, outweigh the physical ones. Fear of recurrence and body pains, anxiety that sometimes seems unexplained, depression, etc. I'm so lucky, though. I have an awestome psychotherapist who can talk me through anything, and I have a psychiatrist who has me on a medication regimen that allows me to live a full, content life. I do have horrible days, but they are much fewer than the good days. The key has been that I've done the very hard work of assembling a team that can attend to my psychological needs. As in medicine, I've hit a few duds, but I finally found my psyche team.

Thank you for writing this important post. Psychological cracks -- the unseen kind -- fascinate me, too. Thanks again for referring to my post. I appreciate it.

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Donna Funkhouser's avatar

Hi Nancy, I could really use some of that resin to fill in my many cracks and scars! I wish it could also fill in my emotional scars as well. I don't know which of the two disturb me more. The physical scars are a constant reminder of troubling painful times, but the emotional scars are also and run much deeper. I agree with everything you said so I won't repeat all of it but I sometimes feel that my body is one giant scar of one kind or another. Of course it's easier than it was a few yrs back but those scars never fully go away. Not even close. And I honestly don't know how to deal with that at this point.

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